As of 2018, there are 7,000 types of rare diseases recognised in the world. In 1983 the Orphan Drug Act was passed in the United States to facilitate drugs for rare diseases that afflicted small number of individuals. To many who are unfamiliar, drugs are commonly catered to facilitate the majority. This is due to factors such as funding, relevance and demand. But all that is gradually changing as more unknown diseases or, to be politically correct ‘conditions’, are coming to the forefront calling for new attention.
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There I was sprucing myself over protocols and hand-ironing my shirt fighting the mid-Sunday heat and YB Maria Chin Abdullah, clad in t-shirt, jeans and black sneakers, extends her hand to welcome me with informality. They say not all heroes wear capes, and I’m looking at one of them. Meet our member of parliament for Petaling Jaya constituency.
There is a new method of effective communication – blocking. And here is how it works. When you don’t like someone or you contend with someone’s point of view and they aggravate you, you block them. CLICK And it seems to be the popular mode of relationship exit for the millennials when words become too overwhelming and the idea of face-to-face conversation is, well according their lingo, impossible. But here are 4 reasons why blocking someone may not be good practice, or even emotionally healthy in the long run.
Formed by a group of final year film students, Fruit Punch Production wowed the audience with their film ‘Lex Talionis’, a 30-minute thriller-horror film which tells of a story of four college students whose friendship is put to test after visiting an abandoned house.
You can trust that it’s there, sense it whenever you need to, once you learn to sense it. This basic goodness that is unconditional, wider than you can imagine.Practice this for five minutes a day, or anytime you notice yourself feeling groundless.
What drives renowned motivator, life coach and book author Zhariff Affandi to inspire people to live a truly happy life “without limits”? When you speak to Zhariff, you can instantly tell that this is a person who truly embraces the concept of self-belief. Despite being born without arms, he rose above such limitations to realise his true potential and continues to inspire others to do the same.
When Daniel Lim planned for a Merdeka video he needed to produce for IACT College, he had a message in mind that he wanted to tell his fellow Malaysians – that the best way to show their love for this country was by simply loving everyone in this country. “I wanted to produce something that gives a different voice from what we’ve been hearing. When we talk about building this nation together, we can never forget that it has to come down to the very basic – that is, honoring and loving each other as fellow countrymen. ”
Once every year, we unpack (or buy) the Jalur Gemilang and fly the flag as a symbol of our patriotic pride. Selamat Hari Merdeka, we greet one another, on this one day of the year. But when the next morning comes, these flags are packed away for yet another year and we go back to being who we were – average Malaysians caught up in the day to day business of getting through our lives the best way we can. But ask ourselves this; what lessons are there from this historical milestone that we can apply in our lives so that we can live each day as if it was Hari Merdeka? Spoiler alert; there are lessons aplenty but here, we’ll just lay out a couple of them here as food for thought.
August is the month we hear the word “MERDEKA” most often, especially as August 31 approaches. Many Malaysians think of this as ‘our’ Independence Day for all Malaysians when, in fact, it only refers to Malaysians in Peninsular Malaysia. The concept of Malaysia Day is often confused with Merdeka Day, also known as the Malaysian Independence Day. Malaysia Day is celebrated on September 16, while Merdeka Day is celebrated on the 31 August each year. In essence, Merdeka Day is a day of celebration to commemorate Malaya gaining independence from British rule. Malaysia Day, on the other hand, commemorates the unification of Malaya, Sarawak, Sabah and Singapore into an independent federation known as Malaysia.
Kumar Nagalingam wears several hats quite competently, namely lawyer, lecturer, trainer and artist. At his first solo art exhibition titled ‘Beyond the Canvas’ in July, the proud artist played host and curator to his well-wishers and guests at GS. Artcade, a mid-sized art gallery along Jalan Gasing, Petaling Jaya.
Kumar’s family was on hand to lend him support on the momentous occasion, particularly his wife Monica and his mother who personally greeted guests and showed them around the gallery.